School Resources

Cure LBSL created and curated resources to help children and teens with LBSL thrive at school. Share with teachers, administrators, school disability committees, and/or the health clinic to help school staff understand the unique needs of students with LBSL. 

Diagram showing tips for thriving in school with LBSC, including mobility and balance assistance, preventing energy depletion, head injury prevention, avoiding overheating, dehydration, fasting, and reducing infection risk.

Thriving in School with LBSL

This packet of resources is great for classroom teachers to learn how to support their students who live with LBSL. It was developed by Melody Kisor, MS, and Molly O’Brien, MA. 

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Book cover titled "How to Prepare for an IEp Meeting" by Molly O'Brien with a white background and purple and green accents.

How to Prepare for an IEP Meeting

Presented to 2022 LBSL International Conference attendees by Molly O’Brien, MA

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Text graphic titled "School Needs and Accommodations for Students with LBSL" with a logo of intertwined ribbons and the words "CURE LBSL" underneath, set against a background with doodles of school supplies and related items.

School Needs & Accommodations for Students with LBSL

Use this packet to help special education and disability accommodation teams to create IEPs, 504s, or other accessibility plans. It was developed by Molly O’Brien, MA, and Melody Kisor, MS. 

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A group of children sitting at a table in a classroom, listening to a teacher.

Information for School Nurses - Mitochondrial Disease

Kennedy Krieger Institute’s Specialized Health Needs Interagency Collaboration Project (SHNIC) created this packet for school nurses and health clinic teams.

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A template letter introducing a child to a new teacher at the beginning of the school year, explaining the child's strengths, needs, and important information for the teacher.

Beginning of the Year Letter

Use this fillable template to draft an introductory letter to a new teacher. It was developed by Beth McGinn, Cure LBSL’s co-founder.

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Zoom meeting poster titled "Back to School with LBSL" with tips for a successful school year, scheduled for Saturday, August 19 at 3 pm New York time, featuring illustrations of books, a pencil, paper clips, and wavy lines.

Community Meeting - Back to School with LBSL

LBSL community meeting hosted by Melody Kisor to discuss ways to help people with LBSL thrive in school! Topics covered included daily needs, accommodations, emergency plans and disability meetings. 

Watch Recording