Alice

From: Brazil
Age at diagnosis: 4 years

As a little girl in Brazil, it took Alice a long time to learn to walk. Once she did, she fell often and struggled with coordination. At age 4, Alice learned she has LBSL.

Now a teen, she uses a wheelchair, and she stays plenty busy with school and lots of therapies. She loves spending time with her friends and family and learning new things.As a little girl in Brazil, it took Alice a long time to learn to walk. Once she did, she fell often and struggled with coordination. At age 4, Alice learned she has LBSL.

Now a teen, she uses a wheelchair, and she stays plenty busy with school and lots of therapies. She loves spending time with her friends and family and learning new things.